Transition Program for Adolescents With Epilepsy
Epilepsy Foundation of Michigan is pleased to be working with the University of Michigan C.S. Mott Children's Hospital to offer a new program for adolescents with epilepsy, and their parents. The program is part of a research study called the Transition Program for Adolescents With Epilepsy. The goal of the program is to help adolescents with epilepsy learn about and get ready for taking care of epilepsy on their own. The study includes the following components:

  • The parent and teen will each attend a Saturday workshop in Wayne, Oakland, or Macomb County (9:30 am - 3:30 pm; lunch provided).
  • After learning and sharing together, parents and teens will split up into two groups at the workshop.
  • Parents will learn more about how to promote epilepsy self-management and how to build confidence in their teen.
  • Teens will learn how to cope with epilepsy, improve their self-management skills, and set specific and realistic goals.

The parent and teen will each complete three surveys (one before the program, one immediately after, and one four months after); all participants who complete these surveys will receive $35 in gift cards.


ELIGIBILITY

Adolescents between the ages of 11 and 17 years who...
  • have been given a diagnosis of epilepsy by a doctor,
  • speak English,
  • are able to fill out questionnaires on their own,
  • and are willing and able to attend a 6-hour workshop

 

In addition...

  • both the child and at least one parent or guardian must come to the workshop and fill out the questionnaires

 


POTENTIAL BENEFITS TO RESEARCH STUDY PARTICIPANTS


  • Opportunity to benefit personally from the program
  • $35 for completing all the questionnaires
  • Opportunity to help others with epilepsy by helping test the effectiveness of a promising new program



Workshops will be held on the following dates and locations in 2014: 

  • 2/8/14 - Warren
  • 2/22/14 -  Southfield
  • 3/8/14 - Livonia (FULL)
  • 3/22/14 - Dearborn
  • 4/12/14 -  Detroit
  • 4/26/14 - Southfield
  • 5/10/14 - Livonia

To be a part of this study, please contact:

Stephanie Rau 734-232-8474 or shatchew@med.umich.edu

For more information, please contact:

Lorrie Carbone 734-232-8896 or lbrach@med.umich.edu 
Russ Derry 800-377-6226 ext. 1302 or rderry@epilepsymichigan.org