Human Epilepsy Project seeks local patients with focal epilepsy who've been on antiseizure medication for less than 4 months

What is HEP?
The Human Epilepsy Project (HEP) is a research project funded by The Epilepsy Study Consortium (ESC), a nonprofit patient and science advocacy organization. The doctors and staff who work with the ESC are some of the doctors you know from Epilepsy.com.

Who Can Participate?
If you answer yes to the three questions below, you may be eligible to participate!

  • Did you start treatment for focal epilepsy in the past 4 months?
  • Have you had 2 or more seizures in the past year?
  • Are you between the ages of 12 - 60 years old?
     
What Does Participation Involve?

  • Receiving an iPod touch with seizure and medication tracking software
  • Answering questions about your medical history and seizures
  • Physical exam
  • MRI (picture of your brain), now and in 3 years
  • EEG (picture of your brain waves)
  • A blood sample each year and when you reach certain amounts of medication
  • A urine sample
     
Participants receive an iPod touch at the first visit and compensation for each annual visit (a total of $200).

Why is HEP Important?
HEP is different from almost every other research project that has come before it.

In HEP, participants become part of the research team in understanding their epilepsy, working with the doctors to closely monitor their epilepsy, including careful tracking of their symptoms and medications using an iPod touch. The doctors look at blood proteins, DNA, EEGs (brain waves), MRIs (brain pictures), and carefully study each participant’s epilepsy. 500 people with epilepsy like yours will participate in HEP. Working together, we will discover molecules and genes in our bodies, and EEG or MRI clues, that will help us understand how patients become seizure free and who will respond to medicines. This knowledge will help future epilepsy patients have more answers–instead of questions–at the time that they develop epilepsy, and will help us eventually find cures that will prevent epilepsy from developing in the first place.

How do I find out more?
To find out more about the study, visit the HEP website or contact Julie Konkle, BSN, RN, CCRP, Clinical Research Project Manager at the University of Michigan Department of Neurology (734-936-8036).