Participate in Epilepsy Research
Participating in epilepsy research has the potential to not only improve your own condition but also help others by increasing our understanding of epilepsy, developing new treatments, and possibly even preventing epilepsy. In some cases, participating in clinical trials and other research studies involves certain risks, so be sure to discuss these risks and possible benefits with your doctor before enrolling in any research study. For additional information on clinical trials and other research in which you can participate, visit the Epilepsy Foundation’s Participate in Epilepsy Research page.

Research Studies and Clinical Trials currently recruiting in Michigan (note: this list is not comprehensive)

Career Development Study in Epilepsy - online survey of teens and young adults with epilepsy to help increase understanding about career development of transition-aged individuals; the survey takes 35-45 minutes to complete; a $10 Amazon gift card is provided to participants 

Human Epilepsy Project
 - a five-year, prospective, observational study whose primary goal is to identify clinical characteristics and biomarkers predictive of disease outcome, progression, and treatment response in participants with newly treated focal epilepsy; University of Michigan is a study site; for more information, contact Julie Konkle, BSN, RN, CCRP, Clinical Research Project Manager (734-936-8036).

Maternal Outcomes and Neurodevelopmental Effects of Anti-Epileptic Drugs
 - an observational study designed to look at the effects of anti-epileptic drugs in both mothers and children; Henry Ford Hospital is a study site; for more information, contact Carla M. Sandles (313-916-3923). 

Established Status Epilepticus Treatment Trial (ESETT) - a study to find out which of three commonly used medicines given in the emergency department for established status epilepticus is safer and more effective. This is an "exception from informed consent study." Normally, researchers get permission before a person can be included in a study. Since a seizure that will not stop on its own must be treated quickly, there will not be enough time to locate and talk to the person’s legal representative about the study, so the person will be enrolled in the study without consent. Once the representative is located or the patient wakes up, they will be asked to give their permission to continue in the study. If you would like more information about the study or would like to decline participation, please call 313-745-4350 or email esett@wayne.edu

Clinical Trials Currently Recruiting in Michigan