Pediatric Epilepsy Telemedicine Initiative
The Pediatric Epilepsy Telemedicine Initiative is a three year federally funded grant awarded by the Maternal Child Health Bureau, Health Resources and Service Administration. The grant has been awarded to the Michigan Department of Community Health, Children’s Special Health Care Services Program. The Epilepsy Foundation of Michigan is a partner on the grant project to provide epilepsy education and self-management for children and youth with epilepsy in the rural clinics.

The goal of the program is to provide access to quality epilepsy care for children and youth with epilepsy in rural and medically underserved areas of the state.  At least six rural primary clinic sites will be developed during the grant cycle. These primary care sites will connect with one of the three children’s hospitals neurology clinics to provide quality epilepsy care. The telemedicine equipment is two-way interactive video conferencing equipment.  Each primary care office serves as the child’s medical home and provides care coordination at each clinic visit. The children and youth with epilepsy and their families who participate are partners in this project with the medical and community team.

“We believe that telemedicine is an essential tool that will increase access to care and provide quality care for the Children, youth, and families we serve,” said Arlene Gorelick, President of the Epilepsy Foundation of Michigan.

The program will use telemedicine technology to connect the rural primary care clinics with pediatric neurologists from C S Mott Children’s Hospital, University of Michigan Pediatric Neurology Department, Ann Arbor, MI; Children’s Hospital of Michigan, Pediatric Neurology Department, Detroit, MI; DeVos Children’s Hospital Pediatric Neurology Department, Grand Rapids, MI. The Henry Ford Health System Pediatric Neurology Department, Detroit, MI. is an additional site for the project.

The Epilepsy Foundation of Michigan will also use this technology to provide families with epilepsy education and support related to epilepsy management.

For more information about the program, please contact Linda Fletcher, MS, CPNP, Project Coordinator.

This program and webpage are fully funded by Grant Number H98MC20273, Access to Care for Children and Youth with Epilepsy, Maternal Child Health Bureau, Health Resources and Service Administration, Department of Health and Human Services.