FOCUS on Epilepsy: a self management program for adults with epilepsy









           


            A SELF MANAGEMENT PROGRAM FOR ADULTS WITH EPILEPSY

The Epilepsy Foundation of Michigan and the University of Michigan's Center for Managing Chronic Disease are looking for volunteers to participate in research to test the effectiveness of a program for adults with epilepsy that provides:

  • The latest research findings on quality of life and epilepsy
  • Tools and a simple step-wise approach to tackling problems related to epilepsy
  • One-on-one support in selecting and working on a problem that you identify
  • Time to share and socialize with other people living with epilepsy
 

PROGRAM COMPONENTS

1:  Two phone interviews
  • Health interview in April or May of 2013
  • Second health interview 10-12 months after the first interview

2:  Workshop in Grand Rapids*
  • Attend a day-long workshop on Saturday, May 18, 2013 in Grand Rapids

3:  Phone Coaching Calls*
  • 4 scheduled, supportive phone calls in the 2 months following the workshop

* Half the volunteers will be selected to participate in the workshop and coaching calls.  The others will be mailed helpful information about quality of life and epilepsy.

Participants completing the research study will receive a gift card worth $40.


ELIGIBILITY

To participate, you must be an adult who…
  • is at least 21 years old
  • has had a diagnosis of epilepsy for at least one year
  • takes medicine for seizures at least daily
  • is mentally able to participate
  • can find one close friend or family member to participate in the research program with you

For more information or to sign up for the program, please contact Russ Derry (ext. 1302).


For additional information on this and other CDC-funded epilepsy self-management research, visit the Managing Epilepsy Well Network website.

You can also listen to the "Hallway Conversation" podcast featuring an interview with Noreen Clark, PhD and Russell Derry, MPH about the FOCUS on Epilepsy program (conducted by Joseph Sirven, MD, Editor-in-Chief of epilepsy.com)


Study ID: HUM00070305 IRB: Health Sciences and Behavioral Sciences Date Approved: 1/8/2013